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Caregiver’s Peer Pod

As part of our commitment to supporting people affected by multiple sclerosis (MS), our Peer Support service has created a new peer pod for those providing support for loved ones living with MS.

Whether you have become a family member or friend’s main source of care, or you help out a little with daily tasks, it can be extremely valuable to hear from others in a similar position about their experiences of caring for someone and it is essential that you take time for yourself too.

 

By joining our pod, you will have the opportunity to chat, speak freely and openly about your own feelings and experiences and gain valuable peer support from others that understand. 

 

Sessions are held via Zoom on the first Tuesday of every month at 5pm

 

If you or someone you know would like to join, please contact our Peer Support Coordinator Vicky at peersupport@ms-uk.org 

Meet our Caregiver Pod hosts...

Russ

‘Hi, I’m Russ and I just volunteered to help lead a peer pod for caregivers with MS-UK. I am new to MS-UK, though my wife has had MS since 1994. I have been the caregiver for my wife since her diagnosis, with my caregiving duties gradually increasing over the years. My wife now needs assistance with all the activities of daily living. 

We live in Chapel Hill, North Carolina and we are retired. Before retirement I worked for the US Environmental Protection Agency and was adjunct professor at the Univ. of NC and NC State University. My background is in public health, air pollution, atmospheric physics, and exposure analysis. Additionally, I provided peer support to fellow EPA employees regarding workplace accommodations for disabilities as an officer of the American Federation of Government Employees.

I am excited to help start this peer pod because it will be one of the few caregiver support groups that is specific to MS and it gives me the opportunity to learn more about medical care and services in the UK. For the past couple of decades I have led a support group in NC for the Well Spouse Association, which is an association for spousal caregivers.  My personal hobbies and interests are travel and hiking, table tennis and a variety of other sports, science fiction, and wood working.

I am looking forward to meeting all the other people who will be participating in this pod.’

Sam

‘Hi I’m Sam and I am one of the hosts for the Caregiver’s Peer Pod.

I live in Gloucester with my wife Claire, who was diagnosed with MS in 2020. We have 2 boys (aged 15 and 10 years) and a black Labrador. We are part way through a 20-year programme of remodelling and refurbishing the family home!

I work as CDM Assurance Manager – providing assurance and support to project delivery teams for management of health, safety and Wellbeing during design and construction for major programmes.

I am hoping to meet others that are in a similar situation and to learn from their experiences. I look forward to welcoming you to the pod!’