Many people affected by multiple sclerosis (MS) find online communities helpful. As more and more people look at ways to self-manage the condition, digital forums and groups can be a great way of connecting with other people, reading real people’s experiences and finding out what works well for other people.
On this page you can find links to various forums and top tips on accessing digital communities safely.
If you have any questions about online forums or would like any information about MS, please get in touch with our helpline team who is always here to listen and offer you support.
Here we have listed online MS forums alphabetically.
This list is not exhaustive and please note that we cannot be held responsible for external content.
Asians with MS
This Facebook page describes itself as for people directly affected by MS who are of South Asian origin and also for friends/family/colleagues of people with a diagnosis of MS.
Carers UK
This is an online forum for anyone with caring responsibilities, to connect with other Carers.
Dorset MS Support
This is a private, closed Facebook group run for anyone living in, or receiving treatment in, Dorset. The group is run by the team behind the public page Hamshire MS Support.
Hampshire MS Support
This is a private, closed Facebook group run for anyone living in, or receiving treatment in, Hampshire. The group is run by the team behind the public page Hamshire MS Support.
Kurmudgeons’ Korner
Kurmudgeons’ Korner is a forum for people who have been diagnosed with multiple sclerosis, run by people with a diagnosis of MS.
Ladies with Lesions
This is a private group on Facebook for women affected by MS. It’s aim is to be supportive, positive and fun.
MS Let’s Chat
MS Let’s Chat was started for Msers and their friends and families to chat over zoom during lockdown. This is the link to the private Facebook group.
MS News Today
The MS News Today Forums are designed for MS patients, caregivers and medical professionals to connect, ask questions and share experiences. This is a public forum.
MS-People
This forum is run by MS People UK, a community website by and for people with MS.
MS Society
The MS Society have five regular forums which include everyday living, new diagnosis, caring for someone with MS, PPMS and news.
MS Trust
This is a public Facebook group run by the MS Trust that explores all aspects of living with MS.
MS & Work
This is a closed Facebook group run by Rebecca which offers support and advice for people working with MS.
MS World
This is a volunteer patient-led forum that has worldwide members.
MS Troopers UK
This private Facebook group is for friends, family and carers of people affected by MS, specially in the UK or Ireland.
MultipleSclerosis.net
This is a USA based forum aimed at anyone affected by MS.
MuMSUK
This is a private Facebook group for mums who live with MS, based in the UK.
Mutual Support
This is a private group on Facebook for supporting members of the military who may be affected by MS.
My MS Team
This is a social network for people living with MS, offering emotional support and practical insights.
Overcoming Multiple Sclerosis
This is a list of forums from Overcoming Multiple Sclerosis, ranging from diet and exercise through to forum threads about drug therapies and recipes.
Patients Like Me
This is a channel is designed specifically for people with MS to learn from one another and develop greater management skills.
Positive about MS
This is a Facebook page with tips and support to live life positively with MS.
Reddit
Reddit is a huge collection of forums where people can share news and content or comment on other people’s posts.
Shift.MS
Shift.ms is the social network and community for people with multiple sclerosis.
This is MS
This website has a wide range of forum threads, focusong on MS research and support.
If you would like more support accessing online communities or getting to grips with technology, you may find these websites useful.
Ability Net
A range of free resources and support from Ability Net.
Age UK
IT training information from Age UK.
