Preparing for an uncertain future with MS

Uncertainty is part of normal life, and everybody will feel it to a degree. We can never be sure of what will happen next, and for some, this can be an exciting part of life. However, for some people living with multiple sclerosis (MS), a constant sense of uncertainty over a prolonged period of time can mean that it becomes difficult to make peace with, or coexist with, that level of uncertainty.

Psychologists and therapists will label this as ‘Intolerance of Uncertainty’. This is quite common with people who have anxiety, pathological worries and other mental and physical health issues. Intolerance of uncertainty can often lead to unhelpful coping strategies and place people at a higher risk of anxiety and depression. If anxiety and depression have affected you, we have a Choices booklet all about MS and mental health which can help you to understand your feelings and find ways to help manage them.

Psychological therapies
Therapy based self-help
Connecting with others and peer support
Work and meaningful activities
Welfare benefits
Accessible toilets and the Radar scheme
Driving and transport
Blue Badge Scheme
Travel concessions and hospital transport
Talking with family and friends
Pregnancy and family planning
Exercise and falls prevention
Smoking and MS
Making a Will
Digital legacy