“How am I going to look after a baby when I’m like this?”Published: 05 August 2022 My name is Helen and I’m 32 and I have multiple sclerosis (MS) On the 04 March 2019 I discovered I was pregnant. As the week went by, I had a spasm in my back every time I bent my neck down. As the days went on, I had pins and needles and numbness in my feet that was there constantly. I was driving home from work one night and my foot was flopping off the throttle which scared me. The numbness travelled up both of my legs until I couldn’t feel anything from the chest down. I couldn’t lift myself off the sofa or walk upstairs. I didn’t know what was happening. I thought it was something to do with pregnancy. The next day I woke up and fell on my side. My mum took me to hospital where I saw a number of doctors and consultants who didn’t know what was wrong. Three days later still at the hospital I saw a neurologist who demanded an MRI scan, lumber puncture and steroids for five days. I wasn’t allowed to have an MRI because I was in my first trimester of pregnancy. After 10 days at the hospital, I had physio before coming home to recover but I still couldn’t feel my legs or feet and felt overwhelmed with sadness, pain and unsureness. At 13 weeks pregnant I was allowed to have an MRI scan. At 14 weeks, I woke up and my left hand went numb and gradually my whole arm as well. Again, I couldn’t feel anything or use it. I had a follow-up appointment at 16 weeks which I thought would just be a normal check-up. The neurologist had a screen in front of him which showed lesions on my spine and one on my brain, he then said it could be multiple sclerosis. I just remember hearing the words MS and I burst out crying, I was sick and felt like my life was over. Thoughts that went through my head were, ‘Am I ever going to walk again? Will I ever feel my legs, arm, and hands normally? Or will I end up in a wheelchair? How am I going to look after a baby when I’m like this?’ I was referred to another neurologist who specialised in MS. Through my pregnancy and maternity, I had a few relapses. I had an MRI in October 2020 and two weeks later I had a phone call to say that the scan showed a few lesions on my brain had developed and I got an official diagnosis of MS. Just before going on treatment, I had another relapse. I was numb from the waist down, my legs and feet were all floppy and I was unable to walk unaided. I had full care from my mum, my relapses were severe, I couldn’t take care of my son and felt like a failure in my head. I compared myself to other mothers who could take their children to the park and other places. A year and a half on I’m in a much better place mentally and physically. Every day with MS is challenging, and I have good and bad days. I take medication for pain and to slow down the progression. I have always got symptoms, mostly invisible ones such as numb hands and feet, pins and needles, tingling, burning and muscle spasticity in my legs, brain fog and severe fatigue. But I am not ashamed of my story, and I hope it will inspire others. I am proud of how much I have overcome these past three years. I have decided to raise money towards MS-UK by taking part in My MS Marathon. I will be walking 30 miles in my spare time to raise money towards this charity. I am forever grateful for my wonderful family and friends, my neurologist, MS nurse, physio and also support from the MS community I have met over the past two years. I will continue to fight this condition every day to give my son the best upbringing he deserves. My next step in life is to do a counselling course to help others. No one should suffer alone. I have also signed up with my friend who is bodybuilder to their gym for weight training. She is creating a special meal plan for me, and I plan to eat four to six meals a day. I’d started weight training before my diagnosis and want to take it up again. Even if you have MS, you can still achieve what you want! Other Stories You May Be Interested In... Blog “I’ve learned to carry a spare pair of knickers as you never know when you might need them” View article Blog Why you should join our peer support service View article Blog Navigating PIP tribunals View article